Why we are fundraising for DSF
The mission of Dravet Syndrome Foundation (DSF) is to aggressively raise funds for Dravet syndrome and related epilepsies; to support and fund research; increase awareness; and to provide support to affected individuals and families.
Andrew and Kimberly blessed our family in September 2017 with the birth of Anna Grace. In her short life she continues to give us so much love and joy. Anna was diagnosed with Dravet syndrome in 2018 after suffering from a number of prolonged seizures.
The total raised to date shown below reflects the efforts of our entire family; Anna’s parents -Kim and Andrew, Kim's sister Chelsea, Andrew's sister Erika and brother Tommy, Andrew's parents Pat and Ted, Kim’s parents Marsha and Cary. Also, Andrew's Aunts and Uncles in St. Louis, Missouri led by Uncle Jimmy Brennan have contributed significantly. In addition, other family members, our friends and others have donated.
Anna's grandfather Ted joined the Dravet Syndrome Foundation Board in 2019 to offer his experience and know-how of working in the healthcare industry to the foundation and patient community.
Our entire family is committed to supporting Anna and the work of the foundation. The cause is very important to us, and we appreciate all the support we can get for our dear Anna and all the children like her. We strive to remain optimistic and focus on reasons for hope, of which there are many.
Never give up and find a cure is our mantra. Our sincere thanks for anything you can contribute. Together we can make a difference.
The Odlaug, Nusslock and Brennan Families
p.s. You can see a full list of our amazing supporters in the Our Donors tab